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Rank: Advanced Member  Groups: Registered
Joined: 11/20/2010 Posts: 244 Location: Cornwall
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Sue,
You'd laugh even more if you saw it! A bunch of middle aged men running around in formation with wheelbarrows is a sight to behold. Their first ever performance is on You Tube if you have the inclination, just search for arrowbarrows. They just did it for a laugh at our village May Day bash after a silly conversation in the pub one Friday night and then they started to get bookings and its all got a bit out of control, proper RAF flying suits etc! First practice was last Sunday and one of the barrows had gone missing up at a local farmer's shed. Turned out it had been used in an emergency to move a newly born calf, a good hose down sorted it out eventually. Cornwall, you see we have to make our own entertainment having no gas or electricity or running water or anything else resembling civilisation!
Happy giggling
Sara
x
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Rank: Advanced Member
Groups: Registered
Joined: 10/6/2010
Posts: 31
Location: Cumbria
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Hi Paula, yes I am on Facebook, I will look for you. I had to pay 50 (1euro = 90p) euros for the initial consultation fee, the rest is for the blood tests. You hit the nail on the head re wildcamping and not being there for too long. We think that is how the GNR take notice and believe it or not they know exactly where the wildcampers are and how long they have been there. Every night they were round but their presence was unobtrusive and somehow reassuring. There are loads of wildcampers and usually they stick together - would not consider wildcamping alone. Pat X
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hi All
Just wanted to say I was in the hairdressers monday and a young girl was washing my hair,
I had to explain I couldnt bend my neck too far because of the RA. To which she said "Oh my brothers got that in his jaw, you can always hear it clicking when hes eating" What can you say??!! Ceri x
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Ceri
Yes that's what we get all the time. GRR > > > > We must laugh or we definately would cry
Rose x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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You were very slow there, Ceri. You should have told her about Jenni's famous gnat's pee, which would cure it in an instant!! Aren't people dingbats sometimes?!
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Mind you, someone once said to me "Is that the one where you end up all bent and twisted, I've just got osteo....." Hmmmm..  Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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I decided to put that I was fed up of RA on my general Facebook page a couple of weeks ago - something I've never done before. My FB friends are a mixture of work and personal friends. I only got a response from one person who said 'what's RA?. This is the woman I jobshared with for nearly 3 years and she worked with me through some horrendous flares and I was diagnosed whilst working with her. Nobody else commented. The woman did actually respond again later to say 'of course I know what RA is'. Still - people are either totally unaware that I've got RA or think that I've got a couple of cronky joints.
Julie x
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Rank: Advanced Member
Groups: Registered
Joined: 10/6/2010
Posts: 31
Location: Cumbria
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Even my husband cant remember what RA is!! Explained it to him, made sure he read the leaflets I was given - he has even been with me when I have been explaining it to others. But it still hasnt sunk in - just goes to show that you can live with someone - yes, and work with them too and it proves it everytime - THEY DONT LISTEN............
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Rank: Advanced Member  Groups: Registered
Joined: 12/13/2010 Posts: 118 Location: Shrivenham, Oxfordshire
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Talk about not listening or understanding - last night I complained to my husband that I was fed up of feeling so tired all the time. He replied "why are you so tired, I looked after the children so you could have an hours sleep this afternoon." so I said thank you and explained that I have been really busy recently and the RA is still not properly under control. To which he replied "I think you should go to the doctors there's obviously something wrong with you if you feel this tired all the time". I decided to laugh because otherwise I'd have bitten his head off. It's still making me smile this morning.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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You can't really blame them for being ignorant though ... we barely understand it ourselves  How are people supposed to know it's an autoimmune disease when all that's banded about is the word 'arthritis'? We're jinxed from the outset with this misnomer  Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 10/21/2010
Posts: 178
Location: aberdeen
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what we need is a snappy catchphrase along the lines of "accountants do it without losing their balance" sort of thing - any advertisers or marketers out there?
and bpeal1, I mentioned your husband's comment to my husband this am and he said, "oh that's understandable, that's a normal response to a statement saying you are tired" - where shall we meet to bang their heads together.
.....eve x
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Rank: Member
Groups: Registered
Joined: 3/16/2011
Posts: 24
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Hi Yes i fell all of your pains..especially the husband not understanding and making "cockeared" remarks...mine is lovely,but doesnt really let me talk about things..only a newbie with this whole thing,and much as i see..i guess he is scared to think how bad things MIGHT get,or he really doesnt know what to say. ARTHRITIS stupid word...people assume as i am alittle plump i have dodgy joints due to my weight and suggest weight loss..which i have tried but find myself either comfort eating in my lonely RA world,or not being able to exercise well due to flares etc etc...roundabouts eh! GRRRRRRR How can we get out men to get whats going on??? vicky 
If at first you don't suceed,try then try again..:-)
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Rank: Member
Groups: Registered
Joined: 3/16/2011
Posts: 24
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PS anybody live in middlesex/north london? Are there any groups there?? x Ps am on facebook if anybody fancies chatting victoria seco
If at first you don't suceed,try then try again..:-)
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Rank: Advanced Member  Groups: Registered
Joined: 12/19/2009 Posts: 182 Location: kilwinning north ayrshire
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i just say i have disease that affects imune system, then people look at me and say thought it was just arthritis lol so dont bother now love the idea with the washing in the bucket think they should do a wee documentary on tv about RA and let people know what its all about,any budding tv producers out there lol take care everyone
xxxx sylvia
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Rank: Advanced Member Groups: Registered
Joined: 12/19/2009 Posts: 182 Location: kilwinning north ayrshire
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vickeynursey wrote:Hi Yes i fell all of your pains..especially the husband not understanding and making "cockeared" remarks...mine is lovely,but doesnt really let me talk about things..only a newbie with this whole thing,and much as i see..i guess he is scared to think how bad things MIGHT get,or he really doesnt know what to say. ARTHRITIS stupid word...people assume as i am alittle plump i have dodgy joints due to my weight and suggest weight loss..which i have tried but find myself either comfort eating in my lonely RA world,or not being able to exercise well due to flares etc etc...roundabouts eh! GRRRRRRR How can we get out men to get whats going on??? vicky hi vicky pllease dont be lonely we on here are all the same boat, my hubby can come in from work and say are you sleeping again think you need to see doc about it just smile sweetly then go into a room and scream lol xxxxxx
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Rank: Advanced Member Groups: Registered
Joined: 12/19/2009 Posts: 182 Location: kilwinning north ayrshire
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Sara-R wrote:Sue,
You'd laugh even more if you saw it! A bunch of middle aged men running around in formation with wheelbarrows is a sight to behold. Their first ever performance is on You Tube if you have the inclination, just search for arrowbarrows. They just did it for a laugh at our village May Day bash after a silly conversation in the pub one Friday night and then they started to get bookings and its all got a bit out of control, proper RAF flying suits etc! First practice was last Sunday and one of the barrows had gone missing up at a local farmer's shed. Turned out it had been used in an emergency to move a newly born calf, a good hose down sorted it out eventually. Cornwall, you see we have to make our own entertainment having no gas or electricity or running water or anything else resembling civilisation!
Happy giggling
Sara
x hi sara, i always like your posts they make me laugh you always seem so up beat about things i can just picture you all looking for lost barrow and farmer borrowing it hope practice went well keep smiling sylvia xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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I always say that I have rheumatoid disease now because of similar comments. A lady asked me the other day and when I said I had RD she said, quite nonchalantly "is that arthritis" and I said " arthritis is only one symptom of it" to which she replied "Oh you poor thing." So it seems the message got across. Not that we want sympathy but just recognition. That's life.
Sheila x
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